My history with Graves

It's been almost 2 months since I stopped taking synthroid without my doctor's prompting. I had been diagnosed with Graves Disease in April 2007, a disease that causes hyperthyroidism. Hyperthyroidism is a nasty, embarrassing disease. It affects every organ and system in my body. My heart rate is over 100 bpm, I have palpitations and an increased risk of stroke. I am forever fatigued, yet I cannot sleep at night. My breathing is heavy, especially if I partake in any kind of activity. Vacuuming ruins me. I started taking tapazol and I became somewhat normal.

In May of 2008 I got pregnant. I had no complications and my wonderful son was born in February of 2009. Everything was hunky dory until Christmas 2009. I started feeling terrible, tired and cold all the time. January 2010 I was told when I went into the emergency room with a goiter so big I couldn't swallow, that I now had hypothyroidism. My doctor said my thyroid had died, and because it had become the biggest goiter he had ever seen, that it would never function again. I was put on synthroid and told that my family doctor could now see me.
After taking synthroid for 2 weeks, I felt great, my goiter had shrunk, and i was happy it was over.

That summer I started feeling crappy again. My goiter was coming back, I has hand tremors and an increased heat rate. I was talking quickly again. I made an appointment with my specialist and told him that I thought I was hyperthyroid again. He gave me a blood rec and told me he'd call me if anything was amiss. I got my blood-work done and waited. 2 weeks later I got an appointment card in the mail for 3 months later. I figured everything was fine.

I got worse and worse. So bad, I stopped taking synthroid a month before going to mt endocrinology appointment. When I got there I found out that I was hyperthyroid in August, his secretary didn't remind him to call me. He wanted me to get more blood-work and call him in 3 days. I did and now I'm on PTU and propanolol. I am also taking calcium and vitamin D to ward off osteoporosis. I'm hoping I go into remission again soon. I am so sick. I am paranoid and anxious. I hate leaving home. I can't even lift up my 21 month old son and carry him up stairs I'm so weak. Doing any sort of house work makes me so tired.